George's Diary
Dr Appt. NYC
Wednesday, June 24, 2009
I met with the transplant team today. I had a PFT (pulmonary function test) and it was at 28%. Which is where it runs when I am not admitted. I also did a bike stress test and that the results came back as a little worse than the last time. After all the tests and his examination of me I am still too healthy to be listed. He seemed like I was close to listing me but not quite yet. I have been in the hospital about every 2-3 months. Their concern is that I can’t maintain my lung function. When I get home from an admission my lung function run sin the high 30’s to low 40’s. As
More Details (166 word(s) in story, 0 Comment(s))Club Med
Friday, May 29, 2009
Well the doctor came in and said that he had looked at my PFT (pulmonary function test) it was 28% and he wanted me to stay for the full 2 weeks. Then I am going home for a week of home IV’s. He is trying something new to see if it will keep me out of the hospital longer. I hope it works. I am going nuts and want to go home. This is the first time that I have done 3 full weeks of IV’s. I hope it work so I don’t have to go back in for a while. I’ll keep you posted. I go to NYC and meet with the team on June 22nd I will let you know how that turns out.
More Details (127 word(s) in story, 0 Comment(s))Club Med
Wednesday, May 27, 2009
Well I have been in here for 8 days now. When I got here I took a breathing test and it was in the mid 30% range. So they started me on the usual coursed of IV’s and physical therapy and using my vest. Today they came in and did another pft and that one was 42%.
My lung function is usually high when I am admitted. So I am hoping to be paroled this week. I call it being paroled when they release me. I have not seen the doc yet today. I am hoping to be paroled on Friday. I’ll keep you posted.
Club Med
Tuesday, May 19, 2009
Well I was starting to feel crappy so my wife said if I didn’t call the doc then see would.
So she called him. My chest was starting to feel heavy and it was getting hard to take a deep breath. So I am getting admitted today for the usual course of IV’s. I’ll keep you posted when I get in.
Dr Appointment
Saturday, April 25, 2009
I went to the Dr. today and had the usual checkup. After the exam he told me that my overall lung strength is less than when I left the hospital in March. My lungs function is still ok but my overall lung capacity is less. I asked what that meant, He asked me if I got tired out fast. I told him that I do. He said that what he meant, I would get tired just walking from the bedroom to the living room. I noticed that I need to wear my oxygen more than I was. He also told me to expect more hospitalizations than I was use to. I go back to NYC in June and I guess we will have to wait and see what he
More Details (137 word(s) in story, 0 Comment(s))Club Med
Friday, March 13, 2009
Well I needed to check back into to Club Med. My chest was feeling heavy and it was hard to take a deep breath. So I call the Dr. and he admitted me. We started the usual routine of IV’s and physical therapy. I was admitted for 11 day with this visit and was on home IV’s for 3 days. I was supposed to go to NY this week to meet with the team but I had to cancel because I was in Club Med. Now I need to call the transplant center and reschedule my visit. I will keep you posted on my progress. I need to go back to my Dr. in 4 weeks for a follow up. I was in the hospital over my birthda
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